Duchenne UK news

Team 3 Peaks for Project GO raise over £10,000 for Duchenne UK

Earlier this month, a team of 9 wonderful supporters embarked on the National 3 Peaks Challenge: climbing Ben Nevis, Scafell Pike and Snowdon within 24 hours to raise money for Project GO and Duchenne UK.

Their current fundraising total is £10,588!

Project GO have recently joined Duchenne UK as a family fund. Nick and Kirsty Ohly were given the devastating diagnosis last year that both their sons Owen and George have DMD. They launched Project GO with the aim of raising awareness and vital funds to support research into a cure. We are very pleased Project GO have joined the Duchenne UK network of families and supporters, all fighting to END DUCHENNE.

We would like to say a huge THANK YOU to the team who took part: Shane Ohly, Nick Ohly, Henry Bruford, Jon Stubblefield, Simon & Hannah Chillingworth, Jonny Narro, Neil McLaren, Tim Bradnock.

And also THANK YOU to everyone who supporters and donated to their challenge.

You can donate here: https://uk.virginmoneygiving.com/Team/3PeaksforProjectGO

Two of the team members from Team 3 Peaks have written a few words about the experience:

Tim Bradnock:

"When our dear friends Nick and Kirsty told us that their beautiful boys, Owen and George, had been diagnosed with Duchenne muscular dystrophy we were devastated. As friends it is not possible to truly experience the unbearable pain that this diagnosis brings to loving parents like Nick and Kirsty, but the pain we felt, was the pain of seeing their suffering and of wanting to let them know that in some small way, we want to walk this walk with them.

Since that day, we have been in awe of the way that Nick and Kirsty have devoted themselves to doing all that they can to change the outlook for children with Duchenne muscular dystrophy. They quickly established 'Project GO', a charity that bears the names of their boys, to support the work of Duchenne UK in raising vital funds for research into this condition, and in so doing, they have already raised over £70,000 which is a phenomenal achievement.

When Nick asked me to join the '3 Peaks challenge' I didn't think twice. What better way to show that literally and metaphorically, you want to walk this journey with them? I am not the spritely young man I used to be and it is fair to say that I found the walk immensely challenging, both physically and mentally. We had a great team, Nick Ohly, Jon Stubblefield, Jonny Narro, Hannah and Simon Chillingworth, Neil McLaren and Henry Bruford brilliantly organised by Nick and it was a real pleasure being part of the group. There were lots of laughs along the way and nearly the occasional tear, but 22 hours and 43 minutes after we began the ascent of Ben Nevis, we completed the descent of Snowdon. It had been gruelling and painful, but above all it was uplifting, seeing Nick and Kirsty's friends united in their determination to change the outlook for this condition".

Henry Bruford: 

“My dear friends Nick and Kirsty Ohly received the news that their boys were diagnosed with Duchenne Muscular Dystrophy last July. Being asked to join a fundraiser and doing the 3 Peaks Challenge for Duchenne UK on Saturday 7th July 2018 was met with hope that raising money for the charity will lead to the elusive cure we so desperately hope for.

This was a huge challenge physically and emotionally. Our crack team of 8 set off with hope and no small amount of trepidation at the task ahead. Carrying the two boys round with us was the key to fast times. Thank goodness the conditions were set fair if a little sweaty.

Worst moment? Severe pace set within 5 minutes of starting the challenge and finding myself wondering just how 3 mountains could be achieved within the time limit.

Best moment? Being given 4 hours to do Snowdon when recommended time was 5 hours and watching the incredible determination of a war vet completing the challenge without one word of complaint and the amusement at seeing consecutive mountain leaders say “I will just walk with Jon and make sure he is okay”... Little did they know...!

The team nailed it and descending was our strong point. It is vital funds are raised as there appears to be great research coming out of America.”


Duchenne UK love to hear stories from our supporters.

Please always get in touch to let us how you are supporting Duchenne UK. 

For ways to get involved please look at our fundraising events and also read our fundraising pack.

Published on 18 July 2018

Share this article