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Test page 1st March

Published: 1st March, 2016

Author: Duchenne UK

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Latest

  • Duchenne UK grants £20,000 to develop an adult Neuromuscular Complex Care Centre in the North East

    Duchenne UK and Joining Jack will jointly commit £20,000 to help develop NMCCC NE.

  • TRI 4 DUCHENNE

    Duchenne UK is excited to be hosting charity waves at the Season Finale Triathlon on Sunday 15th September.

  • An update on our survey and workshop to discuss the use of re-purposed or off label medicines

    We hosted a workshop to discuss the survey on the use of re-purposed or off label medicines

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    London to Paris in 24 hours, by bike! Please contact us to register interest for 2019 [email protected]

  • Girls living with Duchenne

    Duchenne affects approximately 1 in every 3,500 boys that are born but only around 1 in every 50 million girls. It may be rare, but it does happen. We have been speaking to Feriel, a 26 year old woman living with Duchenne muscular dystrophy. She has written us a short blog about her experiences with Duchenne from diagnosis to now.

  • Meet The Team

    Our co-founders Alex Johnson and Emily Crossley met after their sons were diagnosed with Duchenne muscular dystrophy. They both set up charities, Alex with Joining Jack, Emily with the Duchenne Children’s Trust.

  • Gene Therapy Overview

    An exciting new gene-based therapy on the horizon

  • What Are The Stages Of Duchenne?

  • Understand Duchenne

    Find out more about DMD and how we can help you

  • The Impact Of Brexit On Rare Diseases

    Please read and share our paper on the impact of Brexit on rare diseases.

  • Welcome To Duchenne UK

    Duchenne Children's Trust and Joining Jack have joined forces to create Duchenne UK, dedicated to funding and accelerating treatments for Duchenne Muscular Dystrophy.

  • Diet

    A healthy diet is vital for patients with DMD, especially foods high in Vitamin D and calcium

  • How You Can Help

    Join Us to End Duchenne

DMD Hub

Expanding Clinical trial capacity Read more

Published: 1st March, 2015

Updated: 30th July, 2018

Author: Duchenne UK

Related topics:
  • Accelerating Drug Development

OUR INFORMATION DAYS

Please join us at our free Patient Information Day Read more

Published: 27th July, 2017

Updated: 8th January, 2019

Author: Duchenne UK

Comments: 1

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  • Community Engagement and Support

Our Mission To End Duchenne

Duchenne UK has a clear vision; to fund and accelerate treatments and a cure for DMD Read more

Published: 23rd December, 2018

Updated: 24th January, 2019

Author: Duchenne UK

Related topics:
  • What We Do

Impact Report 2018

We are proud to share with you our first ever Impact Report, read about the very real impact we are having and the many things we have been working on over the past six years to end Duchenne. Read more

Published: 1st January, 2019

Updated: 14th February, 2019

Author: Duchenne UK

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Registered Charity No. 1147094. © 2016 Duchenne UK. All rights reserved.
A non profit company limited by guarantee. Registered in England No. 8030768

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