We’ve lobbied with the Empower campaign, which has close links to the Minister for Life Sciences, George Freeman MP, for earlier access to medicines.

We’re pressing the Medicines and Healthcare products Regulatory Agency in the UK, MHRA, to update their Early Access to Medicines scheme - so that companies can seek Conditional or Marketing Authorisation after a Phase II, not after a lengthy costly Phase III.

Picture: Emily Crossley and Alex Johnson, co-founders, Duchenne UK, with the Minister for Life Sciences George Freeman MP, and the Rt Hon Earl Howe, formerly Health Minister