Access to treatments

Update from NICE about givinostat appraisal

We know many of you are waiting for the National Institute for Health and Care Excellence (NICE) decision on whether givinostat will be approved for use in the NHS in England. NICE has just shared this update:

“Following the committee meeting on 23rd October, this appraisal has been paused to allow the company and NHS England to enter into a commercial discussion. We will provide further updates when available.”

You can read it on the NICE website.

We understand how important this decision is for families and how difficult waiting can be.

As soon as we have any news, we will share it with you straight away.