We want to hear your experience of using night splints
We would like to speak to young people and families in the Duchenne muscular dystrophy (DMD) community about their experience of wearing ankle splints and doing stretching exercises.
Designing new splints
The recommended DMD care guidance for preventing ankle contractures involves doing daily stretching and wearing ankle-foot orthoses (often called AFOs, ankle splints or night splints). We know from conversations with families that keeping up with stretching and wearing splints at night can be difficult to manage.
We are designing a new device for stretching the ankle joint. This work builds on an innovative project carried out by Solid Biosciences in the US, which was supported by Duchenne UK. To help us ensure that the product we design is right for people with DMD, we would like to learn more about your experiences of using splints and doing stretching.
Would you like to to help us design them?
We are looking for young people with DMD and/or parents and caregivers to take part in interviews with our research partners at the University of Liverpool.
Interviews will last no longer than 1 hour and will be held via Teams or Zoom, as preferred.
Participants will each receive a £50 GiftPay voucher to thank them for their time.
If you would like to get involved to share your experience, and help us improve the future of ankle stretching, please send your name and contact email to Hayley Philippault, our head of technology at [email protected].