World Duchenne Awareness Day 2022
World Duchenne Awareness Day is coordinated by the World Duchenne Organization and takes place on 7th September each year.
This years’s theme is Women and Duchenne, aiming to raise awareness of the needs and challenges faced by women who support boys and men living with Duchenne muscular dystrophy (mothers, carriers, caregivers, sisters and partners) as well as the patient advocates, scientists and healthcare professionals leading change in the DMD field.
How to get involved in World Duchenne Awareness Day
If you a female carrier, woman living with DMD, caregiver or relative affected by DMD and would like raise awareness of the impact of DMD on women, please get in touch with the Duchenne UK team and we can help you to share your story. We will be sharing the stories of some incredible women this World Duchenne Day so look out for these on our social media channels.
If you would like to use World Duchenne Awareness Day as an opportunity to support Duchenne UK, here are some ideas of what you could do:
- Ask your child's school to get involved in raising awareness by wearing red and making a donation
- Run a coffee morning or bake sale at your workplace
- Set up a Facebook fundraiser and share your story on social media using the #WDAD2022 or #WomenAndDuchenne hashtag
Get in touch with our fundraising team at [email protected] for more ideas and support with fundraising.