You have the following rights in respect of personal information about you which is held by us:

  • Transparency about how we use your data (right to be informed).
  • You can request a copy of the information we hold about you, which will be provided within one month (right of access).
  • You can ask us to update or amend the information we hold about you if it is incorrect (right of rectification).
  • You can ask for a copy of your data in electronic form (right of portability).
  • You can ask us to stop using your information for marketing purposes (right to restrict processing).
  • You can ask us to remove your personal data from our records (right to be forgotten).
  • If you would like to exercise any of these rights please email: [email protected]or write to us at: Duchenne UK, Unit G20, Shepherd’s Building, Charecroft Way, Hammersmith, W14 0EE

In the event that you are unhappy about how we have handled your request, in respect of your personal information held by us, you can make a complaint to the Information Commissioner’s Office at or telephone 0303 123 1113.