Emily Crossley was featured in the Mail on Sunday, discussing her role as co-founder of Duchenne UK, her son's disease, and the important role that the Charity's President, HRH The Duchess of Cornwall, is playing to help the fight against Duchenne.

Like every parent, my first wish for my children and grandchildren is for them to be healthy and happy.

I can’t imagine how it must feel to hear that your child has been diagnosed with Duchenne muscular dystrophy. There is no treatment and there is, as yet, no cure.

I agreed to become president of Duchenne UK because having known Eli as a friend of my grandchildren from their very early years. I wanted to help in any way I could. Parents know, more than anyone else, how vital it is to fund research, and I’m told that new developments in genetics are very encouraging. So much has already been achieved.

But there is still a long way to go.

I hope that everything Duchenne UK is doing to promote research will mean that a cure for this devastating disease will be found in the near future, so that Eli and thousands of other boys worldwide will be spared its misery.

HRH The Duchess of Cornwall

Read the full article here.