Duchenne UK was founded by two mothers whose sons were diagnosed with Duchenne muscular dystrophy in 2011. Thanks to the army of healthcare professionals, scientists, drug developers and families who have joined us in our fight to end Duchenne, we have achieved so much more than we could ever have imagined ten years ago.
We have one clear aim: to end Duchenne.
As the leading Duchenne muscular dystrophy charity in the UK, we connect the best researchers with industry, the NHS, and families.
We know what patients need because we are patients ourselves – living this disease on the front line. We take an innovative approach to funding: we not only accelerate research and bring treatments to patients, but work to change the landscape of drug development. This collaborative approach means that we are able to bring treatments to patients as quickly and effectively as possible.
At the heart of everything we do are our boys and men, and rare girls, living with DMD.
Download our 2022 impact report for a snapshot of what we achieved as we celebrate 10 years of Duchenne UK. This includes progress in DMD research, updates on our projects to improve care and support for DMD families, and fundraising and event highlights.
Impact report 2022Download our previous impact reports to read about what we've achieved so far on our journey to end Duchenne.
Invested in DMD research, support and care
clinical trial staff funded at sites across the UK
more boys taking part in clinical trials for innovative DMD treatments
families received our Family Folder guide to help them cope with a DMD diagnosis
We were delighted to welcome dozens of families to our latest Parents Information Day in London this weekend. We are so grateful for all those who came. People came from across the country – one Duchenne researcher came from Boston in the United States! There were presentations from a range of specialists – and the […]
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Duchenne muscular dystrophy (DMD) is a genetic muscle-wasting disease. Find out about the signs, symptoms and causes of DMD.
About DMD
Find out how we are fighting DMD by funding groundbreaking research, advancing drug development and promoting the best medical care
About our work
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