Our impact

Duchenne UK was founded by two mothers whose sons were diagnosed with Duchenne muscular dystrophy in 2011. Thanks to the army of healthcare professionals, scientists, drug developers and families who have joined us in our fight to end Duchenne, we have achieved so much more than we could ever have imagined twelve years ago.

Young boy with DMD in wheelchair Young boy with DMD in wheelchair

Our mission

We have one clear aim: to end Duchenne.

As the leading Duchenne muscular dystrophy charity in the UK, we connect the best researchers with industry, the NHS, and families.

We know what patients need because we are patients ourselves – living this disease on the front line. We take an innovative approach to funding: we not only accelerate research and bring treatments to patients, but work to change the landscape of drug development. This collaborative approach means that we are able to bring treatments to patients as quickly and effectively as possible.

At the heart of everything we do are our boys and men, and rare girls, living with DMD.

Read our latest Impact Report

Read our Impact Report for 2023 to find out about how we are progressing DMD research, improving care for DMD patients, and developing developing innovative technology to give people with DMD more independence.

Our Impact Report for 2023

Previous impact reports

Download our previous impact reports to read about what we've achieved so far on our journey to end Duchenne.

Our impact in numbers

A boy with DMD taking part in a Duchenne UK gaming day A boy with DMD taking part in a Duchenne UK gaming day

What is Duchenne?

Duchenne muscular dystrophy (DMD) is a genetic muscle-wasting disease. Find out about the signs, symptoms and causes of DMD.

About DMD About DMD

What we do

Find out how we are fighting DMD by funding groundbreaking research, advancing drug development and promoting the best medical care

About our work About our work
A swimmer taking part in a triathlon for Duchenne UK A swimmer taking part in a triathlon for Duchenne UK

Get involved

Join us and be part of something incredible: the fight to end Duchenne. Find out how you can get involved by donating, fundraising and campaigning.

Support us Support us

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