Latest news - Duchenne UK
More clinical trials for DMD running in Glasgow thanks to the DMD Hub
By funding staff posts at the Royal Hospital for Children, Glasgow, the DMD Hub has enabled more trials to take place and more boys in Scotland to take part in research
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Psychological and psychiatric support put in place for DMD patients and families
Dedicated specialist support for Duchenne muscular dystrophy (DMD) patients and families’ mental health and wellbeing will soon be more readily available, as part of the DMD Care UK project.
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NICE release statement on continued access to ataluren (Translarna)
NICE and NHS England have released a statement about continued access for DMD patients currently being treated with ataluren
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No strong evidence for tamoxifen as a treatment for Duchenne muscular dystrophy – TAM-DMD analysis concludes
A group of experts have concluded an analysis on data from the trial of tamoxifen in boys with DMD.
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DMD Research Roundup (March – June 2022)
We aim to share the most important news in drug development with the DMD community through our quarterly roundup.
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Duchenne UK CEO speaks at the ABPI conference
CEO Emily Reuben spoke at the ABPI conference and shared this thought piece on access to DMD treatments
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Going electric for the 10th Duchenne Dash – LCH
LCH have continued their sponsorship for the 10th Duchenne Dash. Hear from a first-time rider about their experience cycling from London to Paris!
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New DMD drug shows success in Phase 3 clinical trial
A new drug aiming to slow progression of DMD, Givinostat, has shown positive results in a clinical trial.
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Why Krishnan Guru-Murthy is presenting the BBC Radio 4 appeal for Duchenne UK – by Emily Reuben
Our CEO Emily Reuben shares her personal story as Krishnan Guru-Murthy presents the Radio 4 Appeal for Duchenne UK today
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