Latest news - Duchenne UK

Young boy doing homework
Patient care & support

Duchenne UK and Decipha continue to support young people with their education and careers

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World Duchenne Awareness Day balloon
Policy and campaigning

World Duchenne Awareness Day 2021

September 7 is World Duchenne Awareness Day. On this day, the World Duchenne Organization raises awareness for Duchenne and Becker muscular dystrophy (DMD/BMD) around the globe. This year's theme will be ‘Adult Life & Duchenne’.

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A vaccine for COVID-19
Patient care & support, Policy and campaigning

JCVI issues advice on COVID-19 vaccination of children and young people

The Joint Committee on Vaccination and Immunisation (JCVI) is now advising that children at increased risk of serious COVID-19 disease should be offered the Pfizer-BioNTech vaccine.

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Patient care & support

Join a psycho-social focus group

Calling all parents of children/young people with Duchenne muscular dystrophy and adults with DMD - join our psycho-social care focus group and help inform the work of the DMD Care UK project to improve psycho-social care.

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A doctor reading a patient's medical report
Accelerating drug development, DMD research

Improving data and decision-making in DMD preclinical research – latest update

Selecting which DMD treatments to advance to human testing is a critical decision. In 2020, Duchenne UK joined with US-based charity Charley’s Fund to improve the data collected in preclinical research.

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Dr Emily Whitehouse, a consultant at Royal Manchester Children's Hospital
Accelerating drug development

New neuromuscular consultant appointed to lead clinical trials as a result of DMD Hub funding

Dr Emily Whitehouse is the latest consultant to join the fight against DMD at the Royal Manchester Children’s Hospital, which is part of the DMD Hub network of clinical trial sites.

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Vision DMD logo
DMD research

Breaking news: Duchenne UK backed drug shows success in clinical trial

Duchenne UK is delighted to announce that Vamorolone, a drug to treat Duchenne muscular dystrophy (DMD), has shown positive results in a Phase 2 Study.

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DMD Hub logo
Accelerating drug development

Duchenne UK funds DMD Hub Manager post for a further 4 years

Duchenne UK has announced a further four years of funding for the DMD Hub Manager role to continue to increase DMD clinical trial capacity in the UK.

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stethoscope on bed
DMD research

Duchenne UK funds study to improve our knowledge of heart care in patients with DMD

Duchenne UK have funded a study that aims to improve our knowledge of treating heart muscle disease in patients with Duchenne muscular dystrophy (DMD).

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