If your child or a family member is living with Duchenne muscular dystrophy, we’re here to support you at any point on your journey, from diagnosis into adulthood. We provide information and resources and opportunities to connect with other families.
A diagnosis of DMD can be overwhelming. As a parent-led charity, we understand what you're going through.
Resources for newly diagnosed
As children with DMD grow older, their needs change. We're here to help you prepare for adolescence and adulthood.
Resources for transitioning to adulthood
Some young people with DMD have additional special educational needs. Find out how to get support at school and beyond.
Get educational support
Accidents and emergencies can be more serious for people with DMD. They will need special medical treatment and should have a documented emergency plan.
Follow our guidance to make sure you know how to respond to falls, fractures and severe illness.
Understand what the best care looks like for your child and your family, and the treatments and therapies currently available to help with the symptoms of DMD.
Duchenne UK run information days to update parents and family members on the latest research, clinical trials and care advice. They also give you the chance to connect with other families affected by DMD.
We're working to ensure DMD patients receive the best care, no matter where in the UK they are based.
Visit the DMD Care UK site
Find out about UK clinical trials for DMD treatments on the DMD Hub - a network of trial sites.
Find out about clinical trials
Watch our webinars series produced during the pandemic and understand the latest guidance
Access COVID guidance
Sign up for the latest news on DMD research, upcoming events and ways to get involved.
