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Get support for your family

If your child or a family member is living with Duchenne muscular dystrophy, we’re here to support you at any point on your journey, from diagnosis into adulthood. We provide information and resources and opportunities to connect with other families.

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Find the support you need

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Help at diagnosis

A diagnosis of DMD can be overwhelming. As a parent-led charity, we understand what you're going through.

Resources for newly diagnosed Resources for newly diagnosed
A boy with DMD and his brother A boy with DMD and his brother

Support for your teenager

As children with DMD grow older, their needs change. We're here to help you prepare for adolescence and adulthood.

Resources for transitioning to adulthood Resources for transitioning to adulthood

Education support

Some young people with DMD have additional special educational needs. Find out how to get support at school and beyond.

Get educational support Get educational support

New Horizons conference

We are holding a new conference for the DMD community in London from 1-2 March 2024. Called New Horizons, the conference is for parents, family members and caregivers, and those working to help people with DMD.

Prepare for emergencies

Accidents and emergencies can be more serious for people with DMD. They will need special medical treatment and should have a documented emergency plan.

Follow our guidance to make sure you know how to respond to falls, fractures and severe illness. 

Young boy with doctor having a heart check up in hospital

Getting the right treatments and care

Understand what the best care looks like for your child and your family, and the treatments and therapies currently available to help with the symptoms of DMD.

Find out more

stethoscope on bed stethoscope on bed

DMD Care UK

We're working to ensure DMD patients receive the best care, no matter where in the UK they are based.

Visit the DMD Care UK site Visit the DMD Care UK site
A nurse from Leeds Children's Hospital A nurse from Leeds Children's Hospital

Clinical trials for DMD

Find out about UK clinical trials for DMD treatments on the DMD Hub - a network of trial sites.

Find out about clinical trials Find out about clinical trials
A doctor treating a boy with leg splints A doctor treating a boy with leg splints

DMD treatments

Find out about the current DMD treatments

Find out about treatments Find out about treatments

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