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Get support for your family

If your child or a family member is living with Duchenne muscular dystrophy, we’re here to support you at any point on your journey, from diagnosis into adulthood. We provide information and resources and opportunities to connect with other families.

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Find the support you need

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Help at diagnosis

A diagnosis of DMD can be overwhelming. As a parent-led charity, we understand what you're going through.

Resources for newly diagnosed Resources for newly diagnosed
A boy with DMD and his brother A boy with DMD and his brother

Support for your teenager

As children with DMD grow older, their needs change. We're here to help you prepare for adolescence and adulthood.

Resources for transitioning to adulthood Resources for transitioning to adulthood

Education support

Some young people with DMD have additional special educational needs. Find out how to get support at school and beyond.

Get educational support Get educational support

Prepare for emergencies

Accidents and emergencies can be more serious for people with DMD. They will need special medical treatment and should have a documented emergency plan.

Follow our guidance to make sure you know how to respond to falls, fractures and severe illness. 

Young boy with doctor having a heart check up in hospital

Getting the right treatments and care

Understand what the best care looks like for your child and your family, and the treatments and therapies currently available to help with the symptoms of DMD.

Parent Information Days

Duchenne UK run information days to update parents and family members on the latest research, clinical trials and care advice. They also give you the chance to connect with other families affected by DMD.

Find out more

stethoscope on bed stethoscope on bed

DMD Care UK

We're working to ensure DMD patients receive the best care, no matter where in the UK they are based.

Visit the DMD Care UK site Visit the DMD Care UK site
A nurse from Leeds Children's Hospital A nurse from Leeds Children's Hospital

Clinical trials for DMD

Find out about UK clinical trials for DMD treatments on the DMD Hub - a network of trial sites.

Find out about clinical trials Find out about clinical trials

Support during COVID-19

Watch our webinars series produced during the pandemic and understand the latest guidance

Access COVID guidance Access COVID guidance

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Sign up for the latest news on DMD research, upcoming events and ways to get involved.