Too often parents and carers of children with DMD and adults with DMD have to argue for the appropriate treatment in A&E.
Our In Case of Emergency app is designed to help you explain what treatment is needed when you are in an emergency.
Our campaign for better treatment, care and support for people with Duchenne muscular dystrophy (DMD) and their families
Our next New Horizons conference is taking place in London from Friday 28 – Saturday 29 March 2025.
It’s a great opportunity to hear the latest news about DMD research, treatments and technology, and up-to-date guidance on care and managing DMD. It’s also an important chance to meet and connect with people from across the DMD community.
We have launched our first grant call focusing solely on research into the heart.
Our Help the Heart grant is worth up to £1.5 million, and will fund ambitious projects to understand and treat the hearts of people with Duchenne muscular dystrophy.
We need to go further than anyone has before to find effective treatments. This means setting our ambitions high and overcoming every barrier in our way.
We’re going to do it faster, because this generation of people living with DMD can’t wait.
The only way we can achieve this is together. We create a network of mutual support for families. We collaborate with scientists and the pharmaceutical industry, bringing them together to share knowledge. And we work with health services so that patients get the care they need.
Join our mission to fund life-changing DMD treatments by fundraising, donating, or joining an event.
Get involved
Duchenne UK is collaborating on a project to improve DMD care throughout the UK by providing clinical recommendations.
Visit the DMD Care UK website
We fund the DMD Hub to bring more UK patients the opportunity to take part in clinical research.
Visit the DMD Hub site
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