Time is muscle

Join our fast-paced and passionate community driven campaign, to give our patients access to a new treatment givinostat

Find out more and how you can take part here

Transforming our rare reality

Our campaign for better treatment, care and support for people with Duchenne muscular dystrophy (DMD) and their families

Join our campaign

Help the Heart

We have launched our first grant call focusing solely on research into the heart.

Our Help the Heart grant is worth up to £1.5 million, and will fund ambitious projects to understand and treat the hearts of people with Duchenne muscular dystrophy.

This is how we’re going to help the Duchenne heart

Further. Faster. Together

We need to go further than anyone has before to find effective treatments. This means setting our ambitions high and overcoming every barrier in our way.

We’re going to do it faster, because this generation of people living with DMD can’t wait.

The only way we can achieve this is together. We create a network of mutual support for families. We collaborate with scientists and the pharmaceutical industry, bringing them together to share knowledge. And we work with health services so that patients get the care they need.

What we do