Yesterday, the new Care Considerations for Duchenne were published by the Centers for Disease Control (CDC) in The Lancet Neurology:

Duchenne UK want to ensure that everyone living with Duchenne has access to the best possible care, therefore we strongly encourage all parents, caregivers and patients to read these updates to the standards of care, which reflect the significant advances in Duchenne research.


We are working with Treat NMD and our international Duchenne charity partners to help create a family-friendly version of these standards of care which we hope to share with you in the coming months.

We would like to thank our friends at PPMD for leading the development of the updated Care Consideration Guidelines.