Make a donation this December to help fund life-changing research into Duchenne muscular dystrophy (DMD) and give people living with DMD and their families the gift of connection.
Make a donation this December to help fund life-changing research into Duchenne muscular dystrophy (DMD) and give people living with DMD and their families the gift of connection.
Ben Clarke was diagnosed with DMD, a severe muscle-wasting disease and the most common and severe form of muscular dystrophy, at just four years old.
From that moment, Duchenne has woven itself into every part of Ben’s family’s life, changing the rhythm of their days and reshaping their understanding of strength.
“We don’t face this journey alone. With the unwavering support of Duchenne UK, we stand stronger. Their relentless commitment to research, advocacy, and accelerating the search for treatments brings real progress within reach. They give families like ours not only guidance and community, but something even more valuable: belief. Belief that breakthroughs are possible. Belief that tomorrow can look different from today. Belief that living with DMD can come with possibilities, not just limitations.” – Alex Clarke, Ben’s dad
When your child is diagnosed with DMD, it can feel like you’re plunged into a dark and lonely place. You’re suddenly navigating a rare and complex condition.
That’s why we’re building Duchenne UK Connect — a new digital platform designed to empower families through connection. It will bring together key information, clinical trial opportunities, and a supportive community — all in one place.
Because when you’re living with a rare reality, the gift of connection is precious.
Give the gift of connection to families affected by DMD this festive season.
Read more about Ben’s story here.
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Follow Duchenne UK on Instagram and Facebook. We will be posting more festive pictures throughout December.
If your child and their siblings would like to feature, or if you are planning a festive fundraiser for Duchenneber, we would love to know more. Send your pictures to [email protected] or tag us in your social posts using @DuchenneUK and #Duchenneber.