Make a donation this December to help fund life-changing research into Duchenne muscular dystrophy (DMD) and give people living with DMD and their families the most precious gift of all, hope.
Make a donation this December to help fund life-changing research into Duchenne muscular dystrophy (DMD) and give people living with DMD and their families the most precious gift of all, hope.
Oscar Smedley was diagnosed with DMD, a severe muscle-wasting disease and the most common and severe form of muscular dystrophy, in October 2017 at seven years old.
The diagnosis left his Mum, Sara, devastated – but she has fought back by raising over £200,000 for Duchenne UK through their family fund, Team Oscar.
“That day was a turning point for me because I realised that I had a choice: and the choice I made was not to be defined by DMD and what it would do, but to be defined by my response, and that was to fight for my son.”
“Duchenne UK has been a lifeline for me and my family. They have changed the landscape for boys with DMD and brought our community together so that families with Duchenne in their lives do not have to feel alone. Oscar is 14 now and like everyone else, he’s counting down the days until Christmas. But the best present he can have is the gift of hope. Hope that he can continue to do the things he loves for as long as possible. Hope that one day, we will end Duchenne. So please, support Duchenneber and give what you can so that boys like Oscar can live better, fuller and longer lives.”
There is currently no effective treatments or cure, but there is hope. Duchenne UK is going further to find effective treatments for DMD and end its devastating impact. We’re doing it faster, too, by accelerating access to these treatments and therapies for this generation of patients.
Give the gift of hope to families affected by DMD this festive season and together, we will end Duchenne.
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Follow Duchenne UK on Instagram and Facebook. We will be posting more festive pictures throughout December.
If your child and their siblings would like to feature, or if you are planning a festive fundraiser for Duchenneber, we would love to know more. Send your pictures to [email protected] or tag us in your social posts using @DuchenneUK and #Duchenneber.