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Harry was two and half when we found out he had a condition called Duchenne Muscular Dystrophy.
Myself and my husband had never heard of this dreadful condition and sat in disbelief as we were told to “go away and enjoy your son, there is not a cure”. After months of tears and feeling like all our hopes and dreams had been taken away for the future we decided enough was enough we needed to do something.
So we decided to start fundraising and it was the best decision we made. My husband took part in the Duchenne Dash and will be taking part again this year. I have ran the London Marathon. We have held lots of events which family and friends have enjoyed but most of all we have raised money to fund vital research into the condition. When we met Alex Johnson and Emily Crossley founders of Duchenne UK and saw how determined and dedicated they were into finding a treatment this gave us the hope and strength to keep going. We are not going to give up on our son and we decided to join them in the fight to save our sons.
We have set up the Help Harry Fund for Duchenne UK.
Harry is now 5 years old. He has started steroids although he cannot walk far he is still on his feet. He enjoys swimming, horse riding, art and crafts and building with his lego and is a very happy boy. He enjoys school and playing with his younger sister Grace.
We do live for the moment. We try to spend as much time with our children as we can as we all dont know what the future holds. We are trying to give our son the best life possible and will continue to fight with Duchenne UK until we find a cure.
Donate to Help Harry here.
Published on 31 December 2020Share this articleCategories Family and Friends Funds