Maggie has 5 children - Efren who is 9 and has Duchenne and his siblings Caspar 11, Mireille 13, Nissa 15 and Aleka 22. They live in Trafford in Greater Manchester. Efren (often known as Renzo) was diagnosed with DMD in December 2014.
At the time Maggie was managing a pre-school and completing a degree in childhood youth studies. She now works part time as a childcare practitioner at a childcare centre ,as well as home educating her four youngest children.
In January 2015 Maggie and Aleka set up Raise for Renzo as a way to share Efren's experience of living with Duchenne with family and friends, as well as the wider community through social media. They also fundraise for Duchenne charities and share information to raise awareness about the condition.
Maggie is interested in trials and treatments being available as widely and quickly as possible, and although Efren is ambulant, she would like to see more trials open to non ambulant boys and men.
Published on 21 August 2017Share this articleCategories Uncategorised