1:00pm Registration for New Horizons opens
1:30pm – 1:50pm Newly diagnosed introductory session
2:00pm – 2:15pm Welcome and introduction (15 min) with

• Alex Johnson OBE
• Emily Reuben OBE

2:15pm – 3:15pm Session 1: DMD Care UK – Good care saves lives: ensure you are up to speed on the latest care guidance (60 min)

• Prof Michela Guglieri
• Dr Anna Sarkozy

3:15pm – 3:35pm Tea & coffee break (20 min)

3:35pm – 4:20pm Session 2: DMD Care UK – Psychosocial including a discussion on talking to your child, managing siblings, managing emotions (45 min)

• Dr Rory Conn
• Chloe Geagan

4:20pm – 4:50pm Session 3: DMD Care UK – Nutrition (30 min)

• Dr Jarod Wong
• Dr Laurie Cave

4:50pm – 5:00pm Closing remarks (10 min)

• Alex Johnson OBE
• Emily Reuben OBE

~Meeting ends 5pm~

5:00pm Networking drinks reception
7:00pm – 10:00pm Duchenne Dinner

8:30am Registration & welcome tea and coffee
9:30am – 9:40am Welcome and introduction (10 min)

• Alex Johnson OBE
• Emily Reuben OBE

9:40am – 10:25am Session 1: Treating DMD: the current landscape & the lessons learnt to date (45 min)

• Prof Volker Straub

10:25am – 11:10am Session 2: Dystrophin replacement therapies – where are we heading with gene therapies, exon skipping and other approaches in development (45 min)

• Prof Francesco Muntoni

11:10am – 11:40am Tea & coffee break (30 min)
11:40am – 12:25pm Session 3: Other therapeutic approaches in the clinic and why we need them (45 min)

• Prof Michela Guglieri

12:25pm – 1:00pm Session 4: Pre-clinical developments and other things you need to know (35 min)

• Prof Annemieke Aartsma-Rus

1:00pm – 2:30pm Lunch (1 hour 30 min)
1:40pm – 2:20pm Lunch breakout session – Education (40 min)

• Nick Catlin
• Associate Prof Janet Hoskin

2:30pm – 2:50pm Session 5: Duchenne UK focus in research and development – what we are funding and where we are going (20 min)

• Dr Alessandra Gaeta
• Hayley Philippault

2:50pm – 3:30pm Session 6: Industry panel session (40 min) chaired by:

• Prof Volker Straub
• Emily Reuben

3:30pm – 3:55pm Tea & coffee break (25 min)
3:55pm – 4:55pm Session 7: Clinician and patient panel session (60 min) chaired by:

• Alex Johnson
• Emily Reuben

4:55pm – 5:00pm Closing remarks (5 min)

• Alex Johnson
• Emily Reuben

~Meeting ends 5pm~