Ben Monro-Davies, Editor of Sky News Sunrise, has taken part in the Dash every year since it began: Back at work after Dash number 7 he reflects on the Dash. Read more
Duchenne UK grant £193,487 to Evelina Children’s Hospital. Read more
This will significantly expand trial capacity for DMD in the UK, particularly in the north west of England. Read more
The Tamoxifen (TAMDMD) clinical trial is now recruiting at Alder Hey Children’s Hospital and Leeds Teaching Hospital Read more
We have teamed up with Whizz-Kidz to give young wheelchair users aged up to 25 in the UK the chance to design their dream wheelchair Read more
We teamed up with Charley’s Fund to fund research into elastase inhibitors as a potential treatment for DMD Read more
Last week, our co-founders and research team attended The MRCs 12th UK Translational Research Conference for Neuromuscular Diseases. Read more
Sejal attended the EURORDIS Winter School to further develop her skills as a patient advocate. It's a one week face-to-face training course on Scientific Innovation and Translational Research. Read more
Testosterone is given to patients who take steroids to help start puberty. Read more
We are incredibly grateful to England Rugby and Owen Farrell for having the boys as mascots at Twickenham on Saturday, helping raise awareness for Duchenne Read more
Our co-founders went to Washington DC to attend Parent Project Muscular Dystrophy's annual advocacy conference and gene therapy policy forum Read more
The DMD Family folder to helps families to bridge the gaps in the coordination between medical, social and support services Read more