Please help us by completing our wheelchair survey

We are collaborating with Whizz-Kidz to look at improving wheelchair provisions so we would like to gather feedback from Duchenne community about their experiences with wheelchairs. The survey will only take 10-15 minutes to complete and will close on 7th of December.Read more

Duchenne UK launches Project HERCULES to help patients get faster access to potentially life-changing treatments

Duchenne UK announces collaboration on Project HERCULES with five leading pharmaceutical companies developing treatments for DMD. Duchenne UK is investing £200,000 in the initial stages of the project.Read more

Founders of Duchenne UK honoured by the Prime Minister's office

Emily and Alex are the latest recipients of Points of Light awards, which recognise outstanding individual volunteers, people who are making a change in their community and inspiring others. They are honoured to receive this award from the Prime Minister’s office.Read more

Duchenne Now joins Duchenne UK

Duchenne UK is delighted to announce that Duchenne Now is joining forces with us to help accelerate our fight for treatments and a cure for DMD. Duchenne Now was founded in 2012, by parents of children and young adults with Duchenne, who between them, have more than 20 years of dedicated Duchenne charity experience.Read more

Duchenne UK responds to a new system to allow NHS patients faster access to ‘breakthrough’ medicines

The Government announced a new scheme that will offer drug companies a fast-track route to get ‘breakthrough’ medicines approved for use by the NHS. This initiative could help to make drugs available up to fours years sooner.Read more

Community Research Update

It’s been an insanely busy few months at Duchenne UK and we wanted to give you an update on all the work we’ve been doing in our fight to accelerate the search for treatments and a cure. Our mission is to look at where we can add value to the drug development pathway, and how we can help to accelerate research that will benefit the whole community.Read more

Duchenne UK's DMD HUB unveiled at World Muscle Society Meeting

Emma Heslop, the DMD HUB manager presented the DMD Hub poster at The World Muscle Society meeting which took place in October. The DMD Hub is a network of trial sites - and staff - trained and funded to carry out clinical trials for DMDRead more

Duchenne UK and DMD Pathfinders on Muscle Owl

Watch Muscle Owl's Talk show, as Duchenne UK's Naomi Litchfield and DMD Pathfinder's Jon Hastie speak with Muscle Owl's Peter Duffy to explain why it's so important that adults with Duchenne have their voices heard:Read more

Steve Mason's 5 for 50 Marathon Challenge for Duchenne UK

Steve Mason, a great family friend of Connor Crawford, has completed his mission of running 5 marathons during his 50th birthday year! We would like to thank Steve for this amazing achievement which raised funds and awareness for Duchenne UK.Read more

Duchenne UK funds research to further understand the benefits of dietary supplements as treatments for Duchenne Muscular Dystrophy.

Duchenne UK are funding £179,520 in to research at the University of Reading to understand the benefits of nutraceuticals (food sources with extra health benefits).Read more

Patient and Caregiver perspectives on Duchenne Clinical Trials Survey Report

In the summer of 2017, Duchenne UK launched its first patient survey, to better understand patient views on accessing clinical trials and research. The results have been analysed and Sejal Thakrar (Smile with Shiv) presents these in a video and a report.Read more

Sarepta Eteplirsen (Exondys 51) Managed Access Program Community Update

Sarepta has made some modifications to the program to allow access to the drug for those who took part in the eteplirsen clinical trials for studies such as study 28, study 33 or the Promovi study. Contact your neuromuscular doctor to apply.Read more