On return to School or College, Decipha are advising parents to request reviews of EHC Plans as soon as possible. It is important that families check with their schools that they have taken measures to make school safe. Read more
We will be sharing updates today on resources to help you understand and manage how Duchenne impacts the brain, learning and behaviour, and what research is happening in to this area. Read more
Watch our webinar with Nick Catlin and Janet Hoskin from Decipha to support families in the DMD community preparing for returning to school. You can also download the risk assessment form template and checklist. Read more
Decipha has continued to help support young people with DMD with their education needs during the COVID-19 pandemic Read more
We have responded to the House of Commons Education Select Committee inquiry. Read more
The DMD Hub is building networks of support for the different people involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials, so more patients with DMD can access research. Read more
If you or your child has experience of taking Raxone / idebenone, please help us by filling in our survey to help NICE understand what impact this medicine may have. At the end of the process NICE will make a decision about whether the medicine should be funded. Read more
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In October 2019, we announced this project. This is a brief update on the progress the team at University of Rochester NY have made. Read more
We held this webinar on 8th July 2020 to give updates on gene therapy and our new £500,000 grant to overcome gene therapy immunity challenges. Read more
The aim of this project is to give every DMD patient access to gene therapy. We have partnered with one of the world’s leading gene therapy teams focusing on AAV immunology. Read more