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Yesterday, we hosted a webinar about the DMD Hub. Our co-founders were joined by Emma Heslop, DMD Hub Manager, and Michela Guglieri, Honorary Consultant at the JWMDC Newcastle. Read more
COVID-19 forced us to cancel the Duchenne Dash. Undeterred, we took the event virtual. And thanks to you ALL we’ve raised a phenomenal £440,000!! Read more
Yesterday, Duchenne UK hosted a webinar to update patients, caregivers and the community on the progress of Project HERCULES and how it is speeding up access to treatments. Read more
$1 Million Committed to Fund Research Proposal/s Which Support Enhancing Gene Therapy Delivery. Read more
We grant £228,843 to fund PhD Post to study the data from the FOR DMD study and the use of corticosteroids. Read more
We wanted to see if we can get scientific evidence to show any significant benefit of soy products for DMD. Read more
This week, our webinar took the format of a community discussion. Thank you to all our speakers. Read more
We submitted the concerns facing patients and families living with DMD. Read more
On Wednesday 6th of May, we were joined by Decipha's Nick Catlin and Janet Hoskin to discuss education, homeschooling and preparing for return to school. Read more
In our webinar, on 29th April 29th 2020, we were joined by Zoe Davidson, Paediatric Nutritionist from Monash University in Australia to discuss nutrition. Read more
This is up to date advice specifically from clinicians, received on 29th April 2020. We will update the advice with further clinical guidance we receive. Read more