NICE have scheduled a re-review of Translarna to be completed in July 2021. Click to read more. Read more
Despite the challenges of 2020, Duchenne UK has achieved much and we hope you find the impact report that we are releasing today, uplifting. Thank you for your support and we wish you a safe and bright 2021. Read more
We're pleased to announce the winners of our Minecraft creative build competition. Read more
Duchenne UK would like to congratulate Hannah on her achievement and thank her for her dedication and hard work on this project. Read more
This summary has been produced by patient groups working in partnership with the manufacturer Santhera to explain more about the trial, what its goal outcomes were, and why it was stopped. Read more
Duchenne UK and the Project HERCULES team held a webinar to celebrate all of our achievements through this ground breaking collaboration to speed up access to treatments. Read more
The DMD Hub, funded by Duchenne UK, is a network of hospitals delivering clinical trials and facilitating access to treatments for the DMD community in the UK. We are pleased to share with you the DMD Hub Impact Report 2020. Read more
DUCHENNEBER is our twenty-four day campaign to raise awareness and funds for research into Duchenne. This year, the 1st of December also falls on Giving Tuesday. Give the gift of HOPE by making a donation to Duchenne UK. Read more
Read about Duchenne UK's contribution to Gene Therapy in an article in the Spectator, written by our CEO, Emily Crossley Read more
This webinar was about the UK recommended steroid stress dosing plans. There was also a demonstration of the hydrocortisone kit and the steps to giving an injection. Read more
The DMD Hub is building networks for the different staff involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials; so more patients with DMD can access research. Read more
Recently, with the support of Duchenne UK, Roan has set up the DMD Sibling Network. This will initially act as an online place for siblings and close friends (age 15+) of Duchenne patients. Read more