A message from Duchenne UK's cofounders: Dear friends and supporters, It’s with a sense of disbelief that we are writing to you all today in a situation none of us probably ever imagined we would live through. Read more
Duchenne UK is hosting regular webinars for the Duchenne community. Please watch the recording of our webinar from today, Wednesday 1st April 2020, with Dr Michela Guglieri. Read more
This is up to date advice specifically from clinicians, received on 1st April 2020. We will update the advice with further clinical guidance we receive. Read more
The charity 'Carers UK' has put together some very useful information pages that answers many questions about what financial support is available for carers. Read more
Duchenne UK wrote to NICE to express our concerns about publication of the NICE COVID-19 rapid guideline critical care. We are pleased to say that NICE has now updated the guidelines. Read more
Watch the recording of our webinar. Read more
This guidance is based on advice from neuromuscular clinical experts who lead the adult and children’s NorthStar and SMA REACH clinical networks. Read more
The Prime Minister issued a statement in which he said we are facing a moment of national emergency, urging people to stay home, protect the NHS and save lives. Read more
We wanted to share the updated government advice on protecting vulnerable people believed to be at most risk from coronavirus. Read more
We know there is a lot of worry and confusion in the DMD community about the risks of Coronavirus (COVID-19) for patients with DMD. We wanted to address some key issues. Read more
The study will compare AFOs and CCDs for managing ankle movement and delaying ankle contractures in ambulant boys with DMD. Read more
Duchenne UK is pleased share an update on our research in to the supplement taurine, believed to have an anti-oxidant effect which reduces inflammation in muscle. Read more