Translarna - January 2021 update

NICE have scheduled a re-review of Translarna to be completed in July 2021. Click to read more. Read more

Duchenne UK hosts second Minecraft creative build competition for young people with DMD and their siblings

We're pleased to announce the winners of our Minecraft creative build competition. Read more

DMD Hub Impact Report 2020

The DMD Hub, funded by Duchenne UK, is a network of hospitals delivering clinical trials and facilitating access to treatments for the DMD community in the UK. We are pleased to share with you the DMD Hub Impact Report 2020. Read more

Duchenneber 2020

DUCHENNEBER is our twenty-four day campaign to raise awareness and funds for research into Duchenne. This year, the 1st of December also falls on Giving Tuesday. Give the gift of HOPE by making a donation to Duchenne UK. Read more

DMD Hub Nurses Network

The DMD Hub is building networks for the different staff involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials; so more patients with DMD can access research. Read more

DMD Siblings Network - Meet Roan

Recently, with the support of Duchenne UK, Roan has set up the DMD Sibling Network. This will initially act as an online place for siblings and close friends (age 15+) of Duchenne patients. Read more