17th International Conference on Duchenne and Becker Muscular Dystrophy

We attended the 17th International Conference on Duchenne and Becker muscular dystrophy in Rome. Read our summary here.Read more

Duchenne UK grants £20,000 to develop an adult Neuromuscular Complex Care Centre in the North East

Duchenne UK and Joining Jack will jointly commit £20,000 to help develop NMCCC NE.Read more

An update on our survey and workshop to discuss the use of re-purposed or off label medicines

We hosted a workshop to discuss the survey on the use of re-purposed or off label medicinesRead more

DMD INSPIRE 2019 Major Grant Call

As part of Duchenne UK's commitment to accelerate research, today we are proud to launch our largest ever grant call, DMD INSPIRE 2019 MAJOR GRANT CALL for projects worth up to £2 million.Read more

Foodbuy extends charity partnership with Duchenne UK

Foodbuy has announced the extension of its charity partnership with Duchenne UK for a further two years. The last 12 months has seen Foodbuy raise an incredible £135,000 for Duchenne UK.Read more

Impact Report 2018

We are proud to share with you our first ever Impact Report, read about the very real impact we are having and the many things we have been working on over the past six years to end Duchenne.Read more

Duchenne UK awards £41,151 through the DMD Hub to Bristol Royal Hospital for Children, to help expand clinical trial capacity

Bristol Royal Hospital for Children is joining the DMD Hub as a Hub siteRead more

Phase 2 of Project HERCULES

Duchenne UK are delighted to announce that eight industry partners are supporting Phase 2 of Project HERCULES in 2019 for this ground breaking global project to better demonstrate the real value of new treatments for DMD for HTA and reimbursement decisionsRead more

Duchenne UK Grants a further £780,000 to Tamoxifen Open Label Extension Study

Open Label Extension Study will give all patients on the TAMDMD trial access to Tamoxifen after completing trial. Total funding commitment to the TAMDMD trial now stands at £1.4million.Read more

Number of children on clinical trials doubles at Great Ormond Street Hospital, following funding through the DMD Hub

Duchenne UK is pleased to share a report from Great Ormond Street about the positive impact of the clinical staff posts we fund at the hospital.Read more


A whole month dedicated to raising awareness and funds for research into Duchenne Muscular Dystrophy. Each day on our DUCHENNEBER ADVENT CALENDAR we will feature news about research projects, new resources for the community, videos & podcasts.Read more