What this privacy policy covers

Duchenne UK (‘DUK’) is committed to protecting your personal information. This policy explains how DUK collects and uses the personal information you provide to us, whether online, via phone, email, in letters or in any other correspondence. Below we set out:

Who we are

DUK is a registered charity which raises money to fund and accelerate treatments and a cure for Duchenne Muscular Dystrophy. Our registered charity number in England is: 1147094 and our registered data controller number is ZA546430

What is personal information

Personal information is any information which allows us to identify you as an individual. This includes your name, contact details and any other information which would allow us to identify you.

Under data protection legislation, certain personal information which is more sensitive in nature, for example in respect of matters such as your health, ethnic or racial origin, religious beliefs or political opinions, is classified as “special”. Any collection and use by us of this type of information is not permitted without further justification.

Click here on the links below to find out:

Changes to our privacy policy

DUK keeps this Privacy Policy under regular review and any updates or amendments will be posted on our website.  This version of our Privacy Policy was most recently updated in August 2020.

How to contact us

If you have any questions about this Privacy Policy or our use of your information generally please do not hesitate to contact us:

  • by email: [email protected]; or
  • by writing to us at: Duchenne UK, Unit G20, Shepherd’s Building, Charecroft Way, Hammersmith, W14 0EE