What to do in an emergency

In an accident or emergency, call 999. Children with Duchenne muscular dystrophy need expert medical treatment. It’s dangerous to treat them yourself or rely on information online.

Tell medical professionals that your child has DMD and direct them to the Duchenne A&E pack website. This has important information for A&E staff on the use of anaesthesia and opiates, as well as the treatment of fractures, heart problems, gastrointestinal problems, breathing problems and information on steroids.

Duchenne A&E pack for medical professionals
Duchenne UK Steroid wristbands

How to prepare for emergencies

Prepare a documented emergency plan with your GP or neuromuscular consultant. This should cover information about medication your child is taking, any medical issues specific to your child and the contact details for their neuromuscular consultant.

Download a DMD medical alert card; this contains important guidance and contact details for medical staff. You can also order a steroid dependent wristband to alert doctors that your child is dependent on steroids. Carry these with you/your child at all times.

Medical alert card Order a steroid wristband

What to do when your child with DMD:

Our resources hub

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Help at diagnosis

We have a series of resources available to help you when a loved one is diagnosed with DMD.

Diagnosis resources Diagnosis resources
Roan and his brother Raul, who has DMD Roan and his brother Raul, who has DMD

Help with your teenager

As children with DMD grow older, their needs change. We provide guidance for families with teenagers.

Resources for adolescence Resources for adolescence
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Help during the pandemic

Many in the DMD community are concerned about COVID-19. Find the latest guidance from experts.

Resources for the pandemic Resources for the pandemic