In an accident or emergency, call 999. People with Duchenne muscular dystrophy (DMD) need expert medical treatment.
Tell medical staff that your child has DMD and show them your Alert Card that can help prevent people with DMD being given the wrong treatment in emergencies.
This is very serious as not receiving the right treatment in a medical emergency can be fatal for people with DMD.
Prepare a documented emergency plan with your GP or neuromuscular consultant. This should cover information about medication your child is taking, any medical issues specific to your child and the contact details for their doctor.
Order a steroid dependent wristband to alert doctors that your child is dependent on steroids.
Watch DMD Care UK’s webinar for more guidance on coping with illness and falls at home, managing steroids and what to say to medical staff in emergencies.
Find out about the current treatments available and care recommendations in the UK.
Current treatments
We have a series of resources available to help you when a loved one is diagnosed with DMD.
Diagnosis resources
As children with DMD grow older, their needs change. We provide guidance for families with teenagers.
Resources for adolescence