Help the Heart

A cardiac themed open call for research proposals

How we’re going to help the Duchenne heart

There has been important progress in Duchenne muscular dystrophy (DMD) research over the last decade, and yet there is still a lack of understanding of the DMD heart and how to treat it.

This needs to change, and we’re going to change it. We’re going to help the DMD heart.


We are aiming to invest up to £1.5 million in 2024 to fund research into understanding and treating the hearts of people with DMD.

We are joining forces with The Patrick Trust, who is committing £200,000 to it over three years. The research grant call will also be funded by Joining Jack and Alex’s Wish.

We are all charities set up because of their love for a family member with Duchenne.

“With a teenager living with Duchenne ourselves, we understand first-hand the priority of heart health. Time and time again, we hear of boys losing their lives far too soon to heart failure. This has to stop. We are incredibly proud of supporting this important work to help save and extend lives of everyone affected by Duchenne.”
Emma Hallam, Founder of Alex’s Wish, and mum to Alex, who is aged 17

“The Patrick Trust is very happy to be joining forces with Duchenne UK, Joining Jack and Alex’s Wish on this crucial area of research. Timely access to the right cardiac treatment can be game-changing in the overall care of people with Duchenne muscular dystrophy, and we hope to fund research that makes a significant difference to it.”
Julian Pritchard, trustee of The Patrick Trust

Why this research is so important

Emily Reuben OBE, co-founder and Chief Executive of Duchenne UK, speaks to Professor John Bourke, Consultant Cardiologist at the Freeman Hospital, Newcastle, about the Duchenne heart and why helping it is so important

Two funding strands

To maximize the impact of our funding, we have divided the call for research projects into two complimentary strands: 

Strand one – Help the Heart: This cardiac themed open research call will run until the end of 2024 with a broad scope, but focused on the cardiac unmet needs in DMD, using our response mode funding model. There are details about the scope, eligibility and submission process below. 

Strand two – A therapeutic focused call: This will launch in March for six weeks, to expression of interest applications. More details on the scope and eligibility will be published in due course.

Thank you for helping this Duchenne heart

Whether you have donated to this research, or if you are a researcher helping to understand and treat the DMD heart, a huge thank you from everyone in the DMD community!

This is why we have to help the DMD heart!