If your child has recently been diagnosed with DMD, you’re likely to be feeling grief-stricken and overwhelmed. As DMD parents, we know how tough it is to hear this news.

We want to help you cope with the diagnosis and plan your child’s care. So, we’ve produced a set of resources that we hope will help you:

The resources include information about DMD and how you can look after your child, your family and yourself. They will help you protect their health, manage their education and make the most of life. 

Understanding your child’s condition will empower you and give you back a sense of control. And it will help you lobby for your child and get them the best possible care. 

If you live in the UK you can order a copy of the folder by clicking here. If you are outside the UK you can download the chapters from the folder by clicking here.

This folder is FREE to all DMD families in the UK. If you are able to donate £10 to cover the cost of the folder and the postage we would be very grateful, donate here.