Some children and young people with DMD have associated learning and behavioural difficulties and need additional help at school. We partner with education experts Decipha to fund free educational support to families.
All children and young people with DMD should have an Education Health and Care Plan (ECHP). EHCPs are documents which set out the education, healthcare and social needs of a child or young person aged 0 – 25.
Early intervention is always best, so if a young person appears to have any difficulties it’s very important that you talk to the SENCO at nursery or school, or to your GP about referral to a professional.
Although all people with DMD are unique, delays and/or differences in the following areas are common:
We fund free education support for young people with DMD through our partners, Decipha. Decipha is a Community Interest Company run by DMD parents with a wealth of experience in Special Educational Needs (SEN).
They offer a range of services to help your child with their education and social development, including:
If your child is just starting or moving schools, share our guide with your child’s teachers so that staff are fully prepared to support a pupil with DMD.
We have a series of resources available to help you when a loved one is diagnosed with DMD.Diagnosis resources
As children with DMD grow older, their needs change. We provide guidance for families with teenagers.Support for your teenager
Read our essential guide to preparing for accidents and emergencies when your child has DMD.Emergency support