Our boys are mascots for England Rugby at Six Nations
Last Saturday 9th of March, Eli, Felix and Jack walked out with Owen Farrell and the England rugby team ahead of their Guinness Six Nations game against Italy.
Watch this video to see how they got on:
Our boys’ appearance at Twickenham will help us to reach an audience of millions across the world, both at the iconic stadium and on television, and help to raise awareness of our ongoing fight against the progressive muscle-wasting disease.
We are incredibly grateful to our amazing ambassador and England captain Owen Farrell and England Rugby for enabling this to happen.
Ever seen @owen_faz hook his fingers together after a successful kick at goal?— England Rugby (@EnglandRugby) March 11, 2019
...it's in support of @DuchenneUK, a charity that aims to end Duchenne Muscular Dystrophy, a devastating muscle wasting disease that mainly affects boys. pic.twitter.com/NuxB1qkE25
Read the article in the Telegraph:
NOTES FOR EDITORS
What is Duchenne Muscular Dystrophy?
Duchenne Muscular Dystrophy is the most common fatal genetic disease diagnosed in childhood. Children born with DMD cannot produce the protein dystrophin which is vital for muscle strength and function. Muscle weakness starts in early childhood. Many use a wheelchair by around the age of 12. As deterioration continues it leads to paralysis and early death, often in their 20s. It almost exclusively affects boys. There is no treatment or cure. In the UK there are around 2,500 boys affected and around 300, 000 worldwide. It is classified as a rare disease.
Who are Duchenne UK?
Duchenne UK is a lean, ambitious and highly focused charity with a clear vision: to fund and accelerate treatments and a cure for Duchenne muscular dystrophy. The charity has been formed by the coming together of Joining Jack and Duchenne Children's Trust, the two biggest funders of research in the UK in the last three years. Its president is HRH The Duchess of Cornwall. Its patrons include the broadcasters Krishnan Guru-Murthy and Mary Nightingale, and the sports stars Owen Farrell, Kris Radlinski and Andy Farrell.
How to donate?
Duchenne UK is entirely reliant on donations to fund research for treatments and a cure to DMD. This can be done via:
- Direct Debit – Duchenne Direct
- Individual Donation – Donate
- If you are a family or friend affected by DMD you can set up your own fund with Duchenne UK – Family and Friend Funds
- Take part in one of our fundraising events – Events
Published on 12 March 2019Share this articleCategories Duchenne UK news