Understand Duchenne

Find out more about DMD and how we can help you

Published:

Author:

Newly Diagnosed

Advice and support for Newly Diagnosed families

Published:

Author:

Attend our FREE Information Days

Please join us at our free Patient Information Day

DMD Hub

Learn about DMD clinical trials in the UK and how to access research opportunities

Published:

Author: Duchenne UK

Resources for parents

We want to help you cope with the diagnosis and plan your child’s care. So, we’ve produced a set of resources that we hope will help you.

Published:

Author: Duchenne UK

Impact Report 2019

We are pleased to share with you our Impact Report 2019. Thank you for helping us grow from a tiny patient organisation to a multi-million pound catalyser and funder of research.

Published:

Author: Duchenne UK

Decipha - Education support

Your RoadMap for Life

Published:

Author: Duchenne UK

Project HERCULES

An awarding winning project to ensure that once treatments are available, all patients can get quick access to them

Published:

Author: Duchenne UK

Duchenne Dash

Our annual 24hr bike ride from London to Paris

Published:

Author: Duchenne UK

Decoding Duchenne

Our podcast series

Published:

Author: Duchenne UK

Gene Therapy Overview

An exciting new gene-based therapy on the horizon

Latest event

  • Duchenne Dash 2020

    Following recent and rapid UK Government developments on the impact and risk of COVID-19, we regret to announce that the 8th Duchenne Dash will no longer be taking place in June and all subsequent training rides will be cancelled. Read more

  • London Marathon 2020

    *Please note we have allocated our places for this event* Support our runners in the London Marathon 2020 Read more

  • Prudential Ride London-Surrey 100

    Prudential Ride London-Surrey 100 is a cycling challenge like no other through London and Surrey Read more

  • Wigan Bike Ride 2019

    Wigan Bike Ride will take place on Sunday, June 30th, 2019 The day will feature a 50-mile main ride and a 5-mile family ride with both starting and finishing in Mesnes Park. Read more

About Us