As the leading Duchenne muscular dystrophy (DMD) charity in the UK, we aim to end Duchenne's devastating impact. We connect scientists, the pharmaceutical industry, the NHS and families to advance and accelerate medical research, while bringing everyone affected by DMD the care and support they need.
We need to go further than anyone has before to find effective treatments. This means setting our ambitions high and overcoming every barrier in our way.
We’re going to do it faster, because this generation of people living with DMD can’t wait.
The only way we can achieve this is together. We create a network of mutual support for families. We collaborate with scientists and the pharmaceutical industry, bringing them together to share knowledge. And we work with health services so that patients get the care they need.
This October, challenge yourself to START a new challenge or STOP a bad habit to raise vital funds to help us to end Duchenne.
Join our mission to fund life-changing DMD treatments by fundraising, donating, or joining an event.
Get involved
Duchenne UK is collaborating on an initiative to improve DMD care throughout the UK by providing clinical recommendations.
Visit the DMD Care UK website
The DMD Hub is a network of sites carrying out clinical studies for Duchenne muscular dystrophy.
Visit the DMD Hub site
NICE has released draft guidance which does not recommend the use of ataluren on the NHS for the treatment of Duchenne muscular dystrophy (DMD) with a nonsense mutation in the dystrophin gene.
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A recent report from a study funded by Duchenne UK has improved understanding of early detection of heart muscle disease in female carriers of Duchenne muscular dystrophy (DMD), paving the way for further research.
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Jo tells her story of her son's diagnosis and daily life with DMD as a mother and caregiver for World Duchenne Awareness Day 2022
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Fleur Chandler is a health economist and currently Head of Market Access at Sanofi, a worldwide pharmaceutical and healthcare company. She is also mum to Dominic, a 16-year-old boy living with DMD.
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Alessandra speaks about her career in science and what's going on the DMD research world for World Duchenne Awareness Day 2022
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Duchenne UK has two exciting new opportunities for a Communications Officer and Programme Manager to work with us. Could you join our small, friendly and passionate team in London and be part of our mission to end Duchenne?
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By funding staff posts at the Royal Hospital for Children, Glasgow, the DMD Hub has enabled more trials to take place and more boys in Scotland to take part in research
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Dedicated specialist support for Duchenne muscular dystrophy (DMD) patients and families’ mental health and wellbeing will soon be more readily available, as part of the DMD Care UK project.
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NICE and NHS England have released a statement about continued access for DMD patients currently being treated with ataluren
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