As the leading Duchenne muscular dystrophy charity in the UK, we want to find effective treatments for DMD and end its devastating impact. We connect the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development.
We need to go further than anyone has before to find effective treatments. This means setting our ambitions high and overcoming every barrier in our way.
We’re going to do it faster, because this generation of people living with DMD can’t wait.
The only way we can achieve this is together. We create a network of mutual support for families. We collaborate with scientists and the pharmaceutical industry, bringing them together to share knowledge. And we work with health services so that patients get the care they need.
Start a new challenge this October and help put a stop to Duchenne muscular dystrophy.
Try something new, improve your skills, share your expertise or try a 31 day challenge!
Duchenne muscular dystrophy (DMD) is a life-limiting genetic disease which causes progressive muscle weakening.
About DMD
Join our fight to fund life-changing treatments for DMD by fundraising, donating, or joining an event.
Get involved
The DMD Hub is a network of trial sites carrying out clinical trials for Duchenne muscular dystrophy.
Visit the DMD Hub site
CEO Emily Crossley took part in a scientific workshop to try to understand more about being a carrier of the DMD gene, and help to address the unmet needs of this patient group.
Read More
Duchenne UK have announced a new grant to study the effects of hydrotherapy, or using water for health benefits, on boys and young men with DMD.
Read More
Duchenne UK CEO and co-founder Emily Crossley has joined the Association of the British Pharmaceutical Industry's (ABPI) new Patient Advisory Council to help represent the patient's voice in the UK pharmaceutical industry.
Read More
Duchenne UK have launched a comprehensive new guide to support families of teenagers and young adults with Duchenne muscular dystrophy (DMD). The DMD Transitions Folder: Guide to Adolescence and Adulthood to help parents and families navigate their child’s changing needs as they grow up.
Read More
Duchenne UK and Project HERCULES announce the launch of a new patient centred, quality of life tool designed to support faster access to new treatments for people living with Duchenne muscular dystrophy
Read More
The NHS has told all GPs to identify vulnerable 12 to 15-year-olds and their siblings so they can be offered vaccination before school starts in September. Duchenne UK is urging eligible families to contact their GP now so their children are included in the programme.
Read More
We're funding more posts as part of the DMD Hub so that more boys are now able to take part in trials for potentially life-changing treatments.
Read More
We're excited to announce the launch of Duchenne UK's Minecraft Creative Build Competition for children and young people with Duchenne muscular dystrophy (DMD) and their siblings this August.
Read More
There is a high risk of learning, behavioural and communication difficulties in Duchenne muscular dystrophy (DMD), as well as problems affecting well-being. As an adult living with DMD or a parent of an adult with DMD, would you be prepared to discuss any of these issues in a small-group online setting?
Read More
Sign up for the latest news on DMD research, upcoming events and ways to get involved.
