DUCHENNE PARENT & CAREGIVER INFORMATION DAY

Duchenne UK is hosting its second free Patient Information Day on Friday 23rd February 2018, at UCL Great Ormond Street Institute of Child Health in London

This event is primarily aimed at educating parents and caregivers about:

•  How their child with Duchenne could participate in clinical trials

•  Current ongoing clinical trials

•  Opportunities to take part in trials that are or will be recruiting in the near future.

There will also be the opportunity to receive the latest care updates, and learn more about supporting the learning and education of children and adults living with Duchenne muscular dystrophy.

DATE: Friday 23rd February 2018
TIME: 9.30am – 4.30pm (followed by a drinks reception to celebrate the launch of Janet Hoskin’s book ‘Teacher and Parent Guide for Duchenne’)
LOCATION: UCL Great Ormond Street Institute of Child Health, 30 Guildford Street, London, WC1N 1EH

Free entry

Light lunch and refreshments will be provided

Register here: https://duchenneuk.eventbrite.com

Please note we will not be providing child care or entertainment as this event takes place during school time.

About Our Previous Patient Information Days

In July 2017 we invited patients and caregivers to a free information day at Alder Hey Children's Hospital, to share with them some of the trials we've funded, update them on the work we are doing, and to give advice and information about how to access research and clinical trials of potential treatments for Duchenne Muscular Dystrophy.

The sessions were focussed on what clinical trials are coming up in the UK in the next 12 months, and how patients can access them. We've created a presentation with all this information on it which you can VIEW HERE.

There were also updates on care and supporting the learning and education of children and adults living with Duchenne Muscular dystrophy..

It was wonderful for us to see so many of our community gather together and support the event. We were delighted with the feedback from the day, which you can read here by CLICKING HERE.

Duchenne UK is entirely reliant on donations to fund and accelerate the search for treatments for DMD

 
Please help us and donate today:

  • Direct Debit – Duchenne Direct
  • Individual Donation – Donate
  • If you are a family or friend affected by DMD you can set up your own fund with Duchenne UK – Family and Friend Funds
  • Take part in one of our fundraising events – Events
  • Text DUCH10 £10 to 70070
THANK YOU FOR YOUR SUPPORT