KINEDMD

During this 12 month clinical trial children will wear a suit on selected days (during clinical assessments at GOSH) allowing it to measure how their body interacts with the world around them. Subjects will also wear fitness tracker bracelets throughout the trial which will collect data on everyday movements at home/school.

Children will be assessed at the National Institute for Health Research (NIHR) Clinical Research Facility at GOSH, overseen by Professor Thomas Voit and Dr Valeria Ricotti. The GOSH team will work with chief investigator Dr Aldo Faisal from the Departments of Computing and Bioengineering at Imperial College London.

The bodysuit and tracker sensors will feed data back in real time, allowing the team to use artificial intelligence to make sense of the data patterns. From there, doctors will be able to monitor disease progression with more precision. Should this study be successful, it will cut down on the amount of time taken to test new treatments, which will drive down the costs of future clinical trials.

 

To read more and watch a short video about this trial, please visit the GOSH website. 

Trial Design

• At GOSH: wear a 17 sensor bodysuit for the day and whilst doing standard physiotherapy assessments.
• At home and school: 4 fitness tracker bracelets worn on ankles and wrists throughout the trial to collect everyday movements. 
• Healthy male controls: Visit GOSH two times in the year to wear sensor bodysuit for the day. Wear 4 fitness tracker bracelets at home/school for 1 week at the start and end of the trial.

 

 
Can I take part?