Partnership opportunities
We believe that collaboration is the key to progress. Together, we can accelerate the development of life-changing treatments.
Our approach to partnerships
The Duchenne Hub UK Clinical Trial Network works to make sure every person with Duchenne muscular dystrophy in the UK has access to clinical trials.
Since 2015, the Duchenne Hub UK Clinical Trial Network has transformed the research landscape by building capacity at hospitals, training staff, and creating tools that make trials easier to run.
Industry partners, research organisations, and funders are invited to work with Duchenne Hub UK.
Together, the development of life-changing treatments can be accelerated.
Why partner with Duchenne Hub UK?
The Duchenne Hub UK Clinical Trial Network is more than a network — it’s a solution to the biggest challenge in rare disease research: capacity.
Clinical trials often stall because sites don’t have the staff or resources to run them. We fix that.
By partnering with Duchenne Hub UK, you’ll:
Reach patients faster through our trusted community connections and trial finder.
UK-wide access
To a UK-wide network of trial-ready sites experienced in Duchenne research.
Reduce delays
Benefit from trained staff and standardised processes that reduce delays.
Experienced team
Work with a team that understands your needs and shares your urgency.
Duchenne Hub UK has developed a suite of tools and services to make your trial a success:
- Site identification and feasibility: We help you find the right sites for your study.
- Site set up: supportingfairness and quality assurance throughout the clinical trial costings process.
- Capacity building: We fund posts to ensure trials run smoothly.
- Training and mentoring: Our team trains site staff on the latest standards of care, clinical developments, and emerging research.
- Our Duchenne UK Connect recruitment database: A secure, GDPR-compliant system to match patients to trials.
- Trial finder: A public-facing tool that helps families find and understand trials.
- Patient-friendly communications: We workwith patient representatives to create clear, accessible materials for families and ensure patient facing documents are appropriate.
- Trusted relationships: We work closely with people with Duchenne and their families, and clinicians, to build confidence in research.
- Strategic advice
- Regulatory and ethical guidance: Navigate UK requirements with expert support.
- Trial design input: Get feedback from expert clinicians and patient representatives early in development.
How the Duchenne Hub UK will work with you
Flexible partnership models:
Contribute to the network’s long-term capacity
Work with the Duchenne Hub UK on innovative solutions for recruitment and trial delivery
Contact our team
If you’re planning a trial or want to explore partnership opportunities, we’d love to hear from you. Together, we can make sure no family misses out on research that could change lives.
