Navigating your journey

SUPPORT AND GUIDANCE

Navigating your journey

We’ve prepared information about living with Duchenne for different ages and environments, so you have the right information for you.

Find the guidance you need

Living with Duchenne involves a lot of management, but we’re here to make it simpler. Here you can look for information by age or by environment.

by age

Recently diagnosed

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Man in glasses and orange jacket smiling in a garden

TRANSITION TO ADULTHOOD

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by location

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Man working from home at a desk with a computer

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"Duchenne UK is a wonderful community that allows all those affected to know that work is pushing forward to find solutions and answers. We never feel left in the dark and they are always prepared to help with any questions that families have."

Barrie Wakeling, whose grandson Felix has Duchenne

"Duchenne UK is working tirelessly for our boys and the Duchenne community. In these crazy, upside down times, what you are all doing means so much. I hugely appreciate all your efforts, and knowing you are all continuing doing what you are doing in this fight against Duchenne helps us all continue doing what we are doing too."

Beccy Davies, whose son Archie has Duchenne

"Duchenne UK continues to achieve incredible things. It's truly inspiring to see the impact they are making. The dedication and passion behind the work is amazing. Thank you to Emily and Alex and the team at Duchenne UK."

Charlotte and Daniel Wakeling, whose son Felix has Duchenne