Our work to transform care
Good care is crucial to living with Duchenne muscular dystrophy, and we work to improve standards of care and make sure everyone gets the support they need.
Our approach
Duchenne is a complex condition that affects every part of life.
Good care can make a big difference, helping people stay healthier for longer and improving quality of life.
We’re making sure that progress in care reaches families everywhere.
We fund and lead initiatives that set national standards, connect families with expert advice, and give clinicians the tools they need to deliver the best care.
Duchenne Care UK
Duchenne Care UK is a collaborative initiative between Duchenne UK and the John Walton Muscular Dystrophy Research Centre at Newcastle University. It works with doctors and specialists to create clear, evidence-based care guidelines and make them available across the UK.
How these guidelines help the community
Clear guidance
· Families can see what care should look like at every stage of Duchenne, from diagnosis through adulthood.
Consistency
Clinicians across the UK can work from the same trusted recommendations, reducing variation and confusion.
Empowerment
When families know what to expect, they can ask the right questions and make informed decisions about treatment and support.
