Managing Duchenne at home
Home should feel safe, comfortable, and positive for your teenager. With planning and support, you can help your child stay as independent as possible.
Why planning ahead helps
Duchenne changes over time, so thinking ahead is important
This gives you time to explore options, apply for funding, and make adaptations without feeling rushed.
OTs are a great source of advice. They can help you choose equipment and suggest home improvements that suit your child’s needs.
Creating a comfortable space
Your home doesn’t need to feel clinical:
Specialist chairs can support posture, and electric profiling beds make moving easier
Arm supports can help with eating or using devices
Ventilation equipment may be needed later, and assistive technology can give your child more control over their environment
Voice-activated systems like Alexa or Google Home can make life easier. Smart devices and apps allow your child to control lights, heating, and even doors. These tools promote independence and reduce the need for constant assistance.
Adapting your home
As mobility changes, home adaptations become essential:
- Ramps and handrails improve safety
- Wet rooms and shower chairs make washing easier
- Ceiling track hoists help with transfers
- Widened doorways allow wheelchair access
- Lowering light switches can make a big difference
Getting help with costs
Home adaptations and equipment can be expensive, but support is available:
Ask your local authority for an OT assessment and apply for a Disabled Facilities Grant
Charities often provide grants for specialist equipment
Need more guidance?
The information on this page comes from Duchenne UK's Adolescence and Transition Folder, which you can order by emailing info@duchenneuk.org to find more advice and guidance.
