Duchenne UK Connect
Booklets

Download our Duchenne UK Connect information booklets
Download our Duchenne UK Connect information booklets

These booklets explain how Duchenne UK Connect works, how your information is used and protected, and how the platform supports research, care and future treatments.

Duchenne UK Connect overview booklet

Everything you need to know about Duchenne UK Connect, including its different modules, key features, and how the platform can support people affected by Duchenne.

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Registry module booklet

Learn how the Registry helps build a better understanding of Duchenne by collecting information about health, treatments, daily life and quality of life from across the UK Duchenne community.

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Research module booklet

Find out how the Research module helps connect people with Duchenne to clinical trials and research opportunities, while supporting fair and equitable access to studies across the UK.

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