New Horizons Terms and Conditions

This agreement (which incorporates these Terms and Conditions and the New Horizons 2027 Registration Form) is made between:

 

(1) Duchenne UK a registered charity (charity number 1147094), whose Registered Office is located at Duchenne UK, Unit G24, Shepherd’s Building, Charecroft Way, Hammersmith, London W14 0EE

 

And

 

(2) You as an individual because you wish to participate in the Duchenne UK New Horizons conference (the “Event”).

 

By accepting these terms and conditions in the New Horizons Registration Form, you undertake and confirm as follows:

- You wish to attend the Duchenne UK New Horizons Conference taking place on 5th–6th February 2027 in London.

- Attendance to the event is free of charge for parents and caregivers and families, healthcare professionals and academics.

- Those attending from pharmaceutical organisations will be asked to pay a £750 (plus VAT) registration fee per person.

- You understand that should you be obliged to withdraw through illness or through another unforeseen circumstance you let Duchenne UK know at the earliest convenience so your place can be offered to someone else. Duchenne UK wants to be certain that as many people can attend as possible.

- Each person attending the event needs to complete the registration form.

 

- Event cancellation due to Covid-19: We reserve the right to cancel: (a) the Event (in whole or in part); or (b) your participation in the Event due to, or as a result of, any restrictions and/or guidance imposed by relevant authorities such as the UK Government, devolved governments, and/or local government authorities) or applicable laws relating to the Covid-19 pandemic (the “Restrictions”). We may, for example and without limitation, cancel the Event and/or your participation in the Event if, in our sole opinion, the Event and/or your participation in the Event is unlawful, unsafe, or undesirable in view of the Restrictions. For the avoidance of doubt, should you contract Covid-19 or need to self-isolate due to Covid-19 and, as a result, cannot participate in the Event, Duchenne UK shall not be obliged to refund the registration fee to you.

 

- For those delegates paying a registration fee, if the Event is cancelled for any of the reasons described in the paragraph above, then Duchenne UK will reimburse the registration fee to you as soon as is reasonably possible.

 

- Covid-19 testing for entry into events: Should testing for Covid-19 be re-introduced in time for New Horizons 2027, and should the relevant authorities (such as the UK Government, devolved governments, and/or local government authorities) confirm such guidelines, participants will be notified. Participants agree to comply with guidelines and requirements as specified.

 

- Places at the event can only be offered as available and are only confirmed when the registration form has been completed and submitted. No places can be held.

 

- You understand that Duchenne UK reserves the right to alter the agenda and/or cancel the Event for any unforeseen circumstances that render this necessary.

 

- You understand that Duchenne UK holds public liability and event insurance for this Event, details of these insurance policies are available on request.

 

- You understand that personal equipment (phones, laptops, tablets) is not covered by the insurance procured by Duchenne UK and is the responsibility of the individual delegate.

 

- You understand that at this Event or related activities, you may be photographed and/or filmed. You agree to grant Duchenne UK, the event holders, producers, sponsors and organisers permission to store and use any photo, video or film featuring yourself throughout the world in all and any media including in printed publications, presentations, promotional materials, photography exhibitions, or on the relevant party’s website.

 

- You are fully responsible for your actions whilst participating in the Event and acknowledge and agree that Duchenne UK does not accept responsibility for your actions nor the consequences of such actions.

 

- You understand that your email address will be added to the New Horizons 2027 Delegate database and you will be sent information relating to New Horizons 2027.

 

- You understand that if you select one of the contact options in respect of Duchenne UK contacting you with details of its fundraising methods, your details will become part of Duchenne UK supporters’ database and that you may be sent materials by the method indicated relating to information and other fundraising activities in the future.  

 

- You understand that you can contact Duchenne UK on the email address: newhorizons@duchenneuk.org at any time should you wish to be removed from such database and Duchenne UK will remove you accordingly.

 

- You have given Duchenne UK certain information about yourself and consent to Duchenne UK using such information in relation to the Event. You understand and agree that all personal information, including medical information provided on this form, shall be treated in accordance with the Duchenne UK Privacy Policy.

 

- This agreement shall be governed by English law and subject to the exclusive jurisdiction of the English courts. 

 

Limitation of Liability

Duchenne UK does not limit or exclude its liability to a greater extent than is permitted by applicable laws for (i) death or personal injury caused by its negligence; (ii) any fraud or fraudulent misrepresentation by Duchenne UK; or (iii) any thing else which cannot be excluded or limited by applicable law. Subject to the preceding sentence, Duchenne UK is a charity and is conducting this Event in its capacity as a charity and as part of its fundraising efforts and therefore shall not be liable to you for any claims for any of the following: (i) loss or damage to property; (ii) personal injury or death (except where caused by Duchenne UK’s negligence); (iii) loss of profit or revenue (such as earnings); or  (iii) indirect or consequential losses arising under or in connection with this agreement or the Event.