Secretary of State for Health and Social Care, Wes Streeting MP, offers help for our EAP campaign
Our response to Sarepta announcement
Sign up to our Time is Muscle WhatsApp group to stay involved in the campaign
GOSH begin dosing givinostat through the Early Access Programme
How Leicester’s Early Access Programme Became a Lifeline for Duchenne Patients
London Assembly unanimously backs Duchenne UK’s Time is Muscle campaign
Roche halts clinic studies of delandistrogene moxeparvovec for people who are non-ambulatory
£300k donated to fund leading-edge research at Leeds children’s neuromuscular service
We want to hear your experience of using night splints
FDA in US removes voluntary hold of ELEVIDYS for ambulatory patients
NICE seeks additional information about givinostat
Givinostat rolled out to patients across Shropshire and beyond
